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This survey is being conducted by the MPN Advocates Network, a subcommittee of the LePAF (Leukemia Patients Foundation) organization in Bern Switzerland. LePAF is a non-profit Patient Advocacy organization dedicated to providing patients groups and patients advocate's information and tools for advocacy work with the Blood Cancer-specific disease areas.

MPN Advocates Network's mandate is to provide patients advocates the resources and knowledge to assist local support groups to provide relevant information to patients and their support networks about MPN Blood Cancer.

The information that you have provided is anonymous and will be securely stored by the MPN Advocates Network. Participation is voluntary and anonymous.

The results from this survey will be aggregated and no identity will be disclosed in any form.

The survey will take about 15 minutes to complete.

Please feel free not to answer if you do not feel comfortable with a question. Some questions may not be appropriate in every country. Please ignore any questions that are not relevant to your situation.

The purpose of the survey is to determine if there is a population of MPN Patients that are underserved, not having their needs met in their MPN Journey and experience.

We thank you in advance for your participation.

MPN Advocates Network Steering Committee.

For any questions, please contact


This survey is anonymous.

The record of your survey responses does not contain any identifying information about you, unless a specific survey question explicitly asked for it.

If you used an identifying access code to access this survey, please rest assured that this code will not be stored together with your responses. It is managed in a separate database and will only be updated to indicate whether you did (or did not) complete this survey. There is no way of matching identification access codes with survey responses.